My latest piece for Firefly

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Hasn’t She Been Through Enough?

“All over the world there are others agonising over life changing decisions like this. There are so many emotions – hope, anger, fear, panic, sadness, anguish, bitterness, optimism.

I feel at the moment like my mind is oscillating between all of those things. Wondering what could be, but being scared of losing what we have. What works for one person may not for another, our complex needs kiddos are all so very different and respond differently to treatments, there will never be any categorical and “obvious” choice when it comes to these matters. Some of the things we’ve had done for Amy turned out to be the wrong decision but the best ever for others.

You just don’t know. We don’t want to gamble with our children’s health and well being.”